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Tuesday, 06 January 2009
 
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full story in this week's chronicle

Emily is ready for her trip to Austria

HER suitcase is packed and passport has been checked as little Emily Harper prepares to fly to Austria today for treatment to help her eat.

The two-year-old has never tasted solid food after she was born with the rare bone condition, Goldenhar Syndrome, which affects about 80 children in the UK.

But after a four month campaign to raise £10,000, Chronicle readers have helped to send Emily and mum Louise to a specialist feeding clinic for a month.

"I am really nervous and excited at the same time," said Louise, 26.

The toddler has survived on a high calorie milk formula fed through a tube in her nose since she was diagnosed with the condition which stops her sucking and swallowing. A team of eating experts hope they can wean her off this method of feeding and teach her how to eat for the first time.

Follow Emily's progress at www.emilytoeat.org.uk
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